Up and About

“My day starts when I wake up and decide when I want to get up. There is no set time – it’s really up to each resident. I use the PEAC system on my computer to call for assistance. Staff members on my care team clean, dress and place me comfortably in my wheelchair.”

“From then on, I have the freedom to move about the Center on my own. For me, this is a vital component of living with ALS. With PEAC automation and my customized power wheelchair, I can move independently throughout the building and campus. I enjoy spending my day outside in the Peace Garden, where the beautiful landscaped grounds provide a serene and comforting environment.”

“There are always people around for companionship, whether it’s the other ALS and MS residents, individuals receiving long term skilled nursing care or those there for short-term rehab. Friends and family members are always welcome to come for meals or even overnight stays. And, of course, some of my closest friends are on staff. There’s a wonderful sense of camaraderie that I think is unique to the Center.”

“I live through my computer. It allows me to speak, conduct business, and connect socially. I am often out in the community, whether it’s to the movies, concerts, museums or sporting events. There have been trips to Disneyland with my son and the other residents and their families, as well as summer outings to Maine and Cape Cod. I go to Red Sox and Patriot games, among many other events. There is a big difference between being kept alive and living a life. The ALS & MS Residences are the only place in the world that I know of that provides the opportunity for people with ALS to reclaim their life and to live it to the fullest.”

“At the end of a busy day, I catch up with my housemates to talk sports or politics or I retire to my room and watch a movie. Because everything is streaming now, I can use PEAC to control my home theater completely independently. When I am ready for bed, I use my computer to call for assistance and I am transferred to my bed until I am comfortable. I usually sleep easily but can call for help anytime I need to be repositioned.”

“I cannot walk. I cannot speak. But I still have an extremely high quality of life thanks to technology and this amazing facility. Don't make the mistake that all my doctors did and assume that because I am 100% dependent on the care of others for the rest of my life, I don't have a quality of life. Actually, I can't imagine enjoying life more.”